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From a spouse:
"He absolutely loved the retreat--even
more than last year."
From a doubting
"We sent you a wounded bird. You
returned to us a soaring eagle. So much of her natural bubbling personality
has come back. I always admired her courage, but so much of this
just went away over the past year. It is wonderful to have her with
From a camper:
"I wake up every morning
and I see Deanie's beautiful face smiling at me and saying softly
and sweetly 'come on, it is time to get up to exercise.' And
I begin my day with hope and want to do everything the way I did
it at camp."
From a Speech Language Pathology graduate student counselor :
“I…have a better understanding of how fatigue, stress, and environmental factors play a role in how a person functions…”
From another Speech Language Pathology graduate student counselor :
“It is now clear how important it is to consider and treat the whole person to even begin to make any sort of genuine impact on speech and language.”
From her social worker:
"She is willing
to accept long term care because she now knows that she will be able to live in a community
of others who have HD."
Singing at camp
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At NY State Psychiatric Institute
Columbia University Medical Center :
Department of Neurology :